Black Women and HIV Research Data Governance Project

Funded by:
Women's College Hospital
Duration:
2022-2024

This project aims to create a community of support for Black researchers, scholars, clinicians, students and community members which will broadly enable HIV research advances. The African, Caribbean and Black Program Expert Steering Committee (ACB-PESC) has been created in GIPA (greater involvement of people living with HIV/AIDS), and MIWA (meaningful involvement of women living with HIV/AIDS) principles, valuing and prioritizing the leadership, and building on the experiences of ACB women living with HIV. The ACB-PESC understands the importance of research with ACB communities and the significant impact it will have on the lives of ACB women. We will utilize ACB expertise to:

- Develop a data governance framework to oversee the ACB women’s health data from the Canadian HIV Women’s Re- productive and Sexual Health Cohort Study.  

- Support the development and implementation of a re-focused research initiative with African, Caribbean, and Black women living with/affected by HIV

- Use community-based research methods (i.e., doing work that is informed by and developed with the community) to engage in transformative action to create a culture of HIV research and care in Canada in which principles of equity, diversity, inclusion, and the elimination of anti-Black racism can be fully realized in policy and practice for ACB women living with and affected by HIV

- Developing a knowledge-to-action plan that leads to immediate and long-term change in policies, legislation, and governance practices within institutions

Black Women and HIV Research Data Governance Project

Funded by:
Women's College Hospital
Duration:
2022-2024

This project aims to create a community of support for Black researchers, scholars, clinicians, students and community members which will broadly enable HIV research advances. The African, Caribbean and Black Program Expert Steering Committee (ACB-PESC) has been created in GIPA (greater involvement of people living with HIV/AIDS), and MIWA (meaningful involvement of women living with HIV/AIDS) principles, valuing and prioritizing the leadership, and building on the experiences of ACB women living with HIV. The ACB-PESC understands the importance of research with ACB communities and the significant impact it will have on the lives of ACB women. We will utilize ACB expertise to:

- Develop a data governance framework to oversee the ACB women’s health data from the Canadian HIV Women’s Re- productive and Sexual Health Cohort Study.  

- Support the development and implementation of a re-focused research initiative with African, Caribbean, and Black women living with/affected by HIV

- Use community-based research methods (i.e., doing work that is informed by and developed with the community) to engage in transformative action to create a culture of HIV research and care in Canada in which principles of equity, diversity, inclusion, and the elimination of anti-Black racism can be fully realized in policy and practice for ACB women living with and affected by HIV

- Developing a knowledge-to-action plan that leads to immediate and long-term change in policies, legislation, and governance practices within institutions

Investigating Health-Related Quality of Life in Indigenous, African, Caribbean, and Black people living with HIV/AIDS in Ontario: OCS Data review
Reimagining Black Health in Canada: critical interdisciplinary engagement in societal and infrastructural factors in Black Canadian health outcomes to support domain knowledge toward the reduction and elimination of Black health disparities
The Aya Circle of Care Project
Reimagining Black Health in Canada: critical interdisciplinary engagement in societal and infrastructural factors in Black Canadian health outcomes to support domain knowledge toward the reduction and elimination of Black health disparities
Impact of the COVID-19 pandemic response on chronic disease management and quality of life (QOL) in Indigenous and Black communities in Ontario
Mentored Midwifery Research